Here's Liam's story.
Our little Liam was born on January 2, 2008...the happiest day of our lives. When he was 4 months old, Liam started getting cyclical fevers, usually lasting a week, but occurring at the same time each month. For about the next 10 months, Liam had been to pediatricians, oncologists, infectious disease specialists, hematologists, and rheumatologists, but none were able to figure out what caused his fevers.
On March 26, 2009, Liam was diagnosed with a rare blood disorder, Hemophagocytic Lymphohistiocytosis, or HLH. HLH is a fatal disease if not treated in time and even then there is no guarantee. Our son now faces chemotherapy and a bone marrow transplant if he is to have any chance at beating this disease. It is not cancer but is treated like it. Words cannot describe the fear and sorrow that enter a parent's heart when given such news. On one hand, we were relieved that we finally arrived at a diagnosis, on the other we were so scared.
We have decided the best place for him is at Cincinnati Children's Hospital under the care of Dr. Lisa Filipovich, expert in the field of HLH, and her staff for treatment including a bone marrow transplant. Our trip began on April 15, 2009.
Now the only thing we can do is stick together with our family and friends to beat this. Out little Liam is a fighter (Liam means "Powerful Warrior") and we welcome you to browse "Liam's Lighthouse", because there is always a light shining in our son's heart.It will only take about 15 minutes to do the test, it's just a swab of your inner cheek. You have to be between the ages of 18 to 55 to donate. Further information is available by calling Holly at 570.313.9940.